Showing posts with label Aspergers. Show all posts
Showing posts with label Aspergers. Show all posts

Sunday, November 18, 2012

Yes,





 First let me begin by making excuses.  I really enjoy this blog and look forward to the day that I can keep up with it. The past weeks have been filled trying to get my mother in law's online store up and running in time for holiday shopping. It has been a rewarding experience. She is truly talented and I have learned a lot about different aspects of her work. Someday I hope that maintaining her store will provide me with the piece of mind I need to stay home and take care of Lian and his needs. Then perhaps I will find that extra moment to update this blog more than once in a while


Anyone who has followed me here, on Facebook or on CafeMom, knows how hard we have tried to find help for my son.  He needs to be officially assessed, diagnosed, treated.  At the very least, he needs to be given the tools that will help him navigate through a neuro-typical world. It has been an ongoing circle of frustration. 

The pediatrician says he needs to be assessed by a therapist. The therapist says the school needs to make the assessment. The school, before we knew they had to help us, told us there is nothing wrong with him that a time out once in while wouldn't cure. After we pointed out that they have to test him based on state law, they told us that they could only test if he were at risk academically. It would seem that my son, who can barely read and write at grade level and state tests below basic, doesn't qualify. There have been a myriad of other excuses from these people as to why they won't assess him but long story made shorter. We finally just went to a different school.


We love Connections Academy it has provided Lian with the flexibility to learn and succeed at his own speed.  However, several times a week we run into extreme prejudice about our decision to put our son in a virtual school. I am always amazed at the misconceptions.  I keep joking about making a top ten most asked question flyer just to hand out to people. 




  • Yes, he does go on field trips, more than your student probably does. Class picnics even.

  • Yes, he uses all the same text books, workbooks and reads the same authors as your student probably does.



  • Yes, he is required to take ALL the same state testing required each year and for graduation as your student does.

  • Yes, he has access to great enrichment programs like, Study Island, Reading Eggs, Khan Academy, First in Math and many more. Just like your student hopefully does.

  

  • Yes, he takes PE, he probably spends more minutes doing physical exercise as part of his curriculum than your student does. 



  • Yes, when he graduates from high school he gets a real diploma, just like your student will. His school even has college visits week (for all grade levels)

  • Yes, there are electives such as foreign languages and music available to all grade levels.

  • Yes, they have honor roll. 




    
  • Yes, there are fun clubs like robotics, chess, math, science, book club, photography, creative writing, school paper, service clubs and so on. Many are open to students in any grade, rather than just the upper grades.
        
 

  • Yes, he does have a very real teacher. She teaches classes, monitors his progress, gives him extra tutoring, grades his papers, offers encouragement.
    
 




 

She also goes above and beyond. She was Lian's teacher last year as well. She has watched his progress carefully and always been there to offer advice and support. She is terrific at getting him to focus. She been amazing at giving him extra tools to get school done. 

Finally, we have been able to set in motion the needed testing to get Lian assessed.  She has kept track of the various things we have tried and the conferences we have had along the way and even offered to be available during my conference with the special ed resource teacher. I was pleasantly surprised, when talking to the special ed teacher, to find out she had already been brought up to speed by Lian's teacher and we were ready to proceed to the next steps. 

In the next couple of months we hope to be getting some answers. I could write a whole other post about how accommodating special ed at Connection Academy has been over the last few weeks(it would of course be as long as this post is). I don't know where this is going to lead, but I am truly appreciative so far. All I have ever wanted for my son was to know how to help him make the best of what he has been given.  I have nothing but respect for teachers in general, but I give kudos to Capistrano Connections Academy for having snatched up Mrs. Vazquez and having the foresight to make her a PACE teacher.  I know my son is a better student for it. I am certainly a less stressed mom.





Wednesday, July 25, 2012

It's Official

I Hate Summer Vacation!!!!!



  When I was a kid, summer was the ultimate. I could be in the pool from the moment I woke up until bedtime, excepting only the occasional meal time. Or possibly, there were great movies on cable or a mountain of books to read. My family always had one big and several small camping trips, which for the record, at the time, I hated. They were halcyon days that lasted forever, until the summer before eighth grade ruined it for me. That was the year our big six state trip took place at the end of summer and we were going to be cutting it close to get me back to be registered on time (we actually had to go to my school before going home when we got back). Looking at the calendar, I counted out the weeks until the trip and school registration and my heart broke a little. Summer didn't last forever. It only lasted twelve weeks. That summer and every summer after, flew by at break neck speed with school always coming back just a little earlier each year. Once I was out of school I didn't pay much attention to summer. My time was now spent with a work schedule that varied week to week, but never took the seasons into account. Summer was just the time of year when it sucked to be outside because it was so hot. Then my baby started school.

 I never looked forward to summer more than that first summer after kindergarten. It signaled the end of a truly hellacious year. Lian's teacher even started it early by giving him the last day off because it wasn't necessary and she just couldn't handle him back in the classroom. Personally, I was glad that the fight to get the boy out the door each morning amid tears was over. We had already decided that we would be doing anything we could to not send him back to that school, for both their sakes. Summer was going to be a huge relief. 

 We had just become acquainted with the concept of Aspergers Syndrome and I still hadn't grasped just what that meant. I should have been prepared. The three long holiday breaks during the school year were trying times for us. The super long Winter break was difficult to begin and even more difficult to end. In the crush of everything else going on it never occurred to us to ask why. Of course he was misbehaving, he was decompressing from the stress of school. Of course he didn't want to go back, he hated school. It never occurred to us that the drastic and sudden change in routine was causing problems for our little one. Summer that year was the worst break of all. The entire three months was one meltdown after another. It wouldn't be until the next summer that that would make sense to me.

 By the next summer, I was better educated as to why my son behaves the way he does. Summer doesn't mean fun to him. It is this gaping chasm of indeterminate time, where daily routines change daily, television plays different shows than he is used to and the sun and heat wreak havoc with his overactive senses. Plus, if that wasn't enough, at the end, he faces a new teacher, in a new class, and new, as yet undefined, challenges in his new grade. Summer, to put it lightly, is purgatory for him.

 As we get older and hopefully wiser, we have learned to change up his routine as little as possible during the summer. It is a learning curve. It is a battle between doing what is necessary and letting Lian be as much like other kids as he can. This summer it has meant summer school lessons, structured walks and timed sessions in the pool, and stricter than usual rules about television consumption. Still, that doesn't completely fill the void of missing hours in the usual school routine. I keep him as busy as I can with projects for his blog. It has worked moderately well so far, but as the first two thirds of summer comes to a close, school and a normal routine is just too far in the distance.

 It is made worse by the fact that Dad is also on Summer Break. For all the same reasons it is just as hard for him. Being an adult he has, over the years, learned to cope with the changes in routine that life throws at him, but that doesn't mean they are easy for him. Then just to be difficult, not only does he have to change up everything for the summer but he has all the grown up issues of everyday life to contend with. Quite frankly by this time each summer, it's like a powder keg around here. Both my guys have had just about much as they can take. This should be the point where a new routine falls into place and life moves forward more smoothly. However, since they both know that at the end of August the routine changes up again, this period turns into one of limbo. Putting as Aspie into limbo is just plain cruel. Just to throw some more gas on the fire, I have stepped up my attempts to either get an outside job or go back to school myself. That anticipation of my not being there like always has Lian filled with anxiety and having to work around a new schedule has added stress to Dad's life.

Connections Academy has the kids going back a week earlier this year. School is going to be a huge relief. Since we already have the books and the printed lesson plans, I will be gradually gearing school back into place over the next month, so the transition back to a full school day (which usually takes several weeks) hopefully won't be as difficult this year.  I still have four weeks of summer to get through. I really need a vacation from summer vacation. I long for the days when summer lasted forever and it was a good thing.



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